On November 2, 1983 I was born…with my first pre-existing condition. You see just like many babies I was born with a heart murmur. My particular condition is an atrial septal defect (ASD) aka a hole in my heart. I have been fortunate that my ASD has never caused major complications, I have also been fortunate to have continuous health care throughout my life to make sure that it wasn’t an issue. Unfortunately this is not my only medical problem. It was April 9, 1993 that I had my first grand-mal seizure and received the diagnosis of Epilepsy. This diagnosis had a much greater impact on my life than the ASD. I have always said that I am only alive today because my father, a (retired) steel worker and union man, was able to provide amazing health insurance that gave me access to the best doctors and any treatment they saw fit. Over the course of the past 23 years I have been on 7 different medications, had extensive testing including a week long stay in the hospital where I was monitored by video and EEG to see what my surgical options would be. I also ended up having surgery in 2007 where the doctors gave me a VNS (vagus nerve stimulator) implant. Without health insurance that VNS implant would cost roughly 20,000. This means that it would not have been an option for me and realistically would not be an option for most people. My prescription costs alone would be unafforable if not for my health insurance. The medications typically used for seizure control are not the type that show up on a free or low cost list. The two medications I take daily for my seizures would come to roughly 500 per month, which in our family is a significant amount. I have one daughter and 2 stepsons, all 3 have healthcare which we are happy to provide. A parents worst fear is that we could, like many people, fall on hard times and lose those benefits. God forbid life would hit you hard and you’d need a hand. The current president thinks you don’t deserve one, but I believe that health care is a right not a privilege… we all deserve to live.
I know what Trumpcare supporters will say. Since I already have insurance none of this applies to me. Well yeah maybe not right now, but what about in the future? More importantly what about all of the people who have situations similar to mine or much much worse that are struggling to stay alive. You see unlike my conservative counterparts I care about other people. I do not see my fellow Americans as disposable. I believe that whether they were born with their condition or developed it later they deserve full coverage. No one should have to worry about dying because they cannot afford to live. Some people in this country are so wealthy that they couldn’t even imagine what it feels like to choose between medication and the electric bill. They will never know the feeling of having to reject the recommended treatment because the cost is just to high. President Obama developed the ACA because he wanted America to thrive, President Trump is pushing for a plan that he probably hasnt even read, just because he wants his name out there…damn the consequence.
I don’t know when our country reached this point but we are not the strong nation we once were. America is only as strong as the citizens who inhabit the country and if our elected officials don’t care if the citizens live or die, why should others see us as anything but weak. I hope that once again Trumpcare is rejected and that we don’t let this sneak past. This issue is far too important to be rushed, the Republican party knows this because they said it when the ACA was being developed. I will not sit by quietly while our government uses our lives as their tool for negotiating tax cuts. There is a compromise somewhere, a way to provide healthcare at a reasonable cost while still protecting the people who need it the most… but it is going to take hard work, dedication and compassion… let us “pray” that they won’t actually just let us die.